The top 5 signs of lupus are:
1. Butterfly rash: This is a rash that appears as a red and warm area across the cheeks and nose that is often referred to as the “butterfly rash” due to its shape.
2. Joint pain, stiffness, and swelling: Persistent joint pain and swelling are common lupus symptoms. Pain could be experienced in any joint, but is most commonly seen in the fingers, wrists, and shoulders.
3. Fatigue: Lupus can cause extreme fatigue that persists even after rest, making it difficult to carry out daily activities.
4. Hair loss: Lupus can cause hair loss and scalp sores that can be both temporary or permanent.
5. Sun sensitivity: Lupus patients are often sensitive to sunlight and bright lights which may cause a skin rash or facial flush.
What were your first lupus symptoms?
My very first lupus symptoms were achy joints, extreme fatigue, and a constant feeling of exhaustion even after sleeping for 8-10 hours. My eyes were also very bloodshot. I had also developed a light rash on my cheeks, which would come and go in periods of flare-ups.
I would get random fevers and chills, along with throat swelling and shortness of breath. I went to the doctor and they ran tests but couldn’t determine the cause at first. It was only after more tests and monitoring that I was diagnosed with Systemic Lupus Erythematosus.
How fast does lupus progress?
The speed at which lupus progresses can vary depending on the individual, but typically this illness progresses slowly over time. Many people with lupus experience periods when their symptoms worsen known as flares, followed by periods of remission when their symptoms improve or go away completely.
It’s important to note that not everyone with lupus experiences flares and periods of remission; some people experience a steady increase in symptoms over time.
The timing and severity of lupus flares can vary greatly, and there is no one-size-fits-all approach to managing the disease. Treatment typically involves lifestyle changes, medications, and other therapeutic interventions to help manage symptoms, reduce flares, and prevent organ damage.
In some cases, symptoms can persist for months or even years without appropriate treatment.
It is difficult to predict the progression of lupus. Some people can have mild symptoms or manage their condition through lifestyle modifications, regular medical care and medication, while others have more serious cases which may require intensive interventions or frequent hospital care.
The disease is unpredictable and the speed of progression can vary from person to person.
What part of the body hurts with lupus?
Lupus is a chronic, autoimmune disease that can affect many different parts of the body, leading to an array of symptoms. Common lupus symptoms that relate to pain and discomfort can vary, but may include joint pain, muscle and tissue pain, chest pain, abdominal pain, and headaches.
Joint Pain: Pain and swelling in the joints is a common symptom of lupus, which can be caused by inflammation in the lining of the joint or in the ligaments and tendons that connect the bones. This can affect the knees, hips, elbows, and wrists, and often feels like a dull ache.
Muscle and Tissue Pain: Lupus can cause a wide range of discomfort in the muscles and tissues, ranging from a dull ache to a sharp, stabbing pain. This pain may come and go, or it may be localized in one area or spread throughout the body.
Chest Pain: Lupus-related chest pain is usually located in the front of the chest and may be sharp or dull. This can be caused by inflammation in the lungs, though it can also be a sign of an enlarged heart.
Abdominal Pain: Lupus can cause stomach pain and tenderness due to inflammation in the stomach lining and intestines. This can lead to diarrhea, constipation, or other digestive problems.
Headaches: Headaches are a common symptom of lupus and can range from mild to severe. They may be accompanied by nausea, light sensitivity, and dizziness.
Does lupus show up in blood work?
Yes, lupus can show up in blood work. A blood test for lupus is known as an ANA test, which stands for antinuclear antibody test. This is a test to detect certain autoantibodies that are produced by the body’s immune system when it attacks its own tissues, which is one of the hallmark signs of lupus.
The ANA test is typically used as an initial screening tool to help diagnose lupus, and it can also be used to help monitor the progress of an existing lupus diagnosis. Other laboratory tests may also be conducted to help diagnose lupus and include tests that look for inflammation or abnormalities in the vital organs such as the lungs, heart, kidneys and liver.
When should you suspect lupus?
If you are experiencing any of the following symptoms, you should suspect lupus and consult your doctor:
– Unexplained fatigue
– Hair loss
– Anemia
– Joint and/or muscle aches and pains
– Fever of unknown origin
– Skin rashes on the face and elsewhere, including a butterfly-shaped rash across the cheeks
– Abnormal blood clotting
– Sensitivity to the sun
– Swelling of the face and/or other organs
– Dry eyes or mouth
– Photosensitivity
– Low white blood cell count
– Low platelet count
– Abnormal liver tests
– Raynaud’s phenomenon
– Brain fog or confusion
With lupus, symptoms may come and go on their own or in response to certain environmental triggers such as stress, sunlight, and certain medications. In addition, individuals may not experience all symptoms.
Furthermore, lupus can sometimes be difficult to diagnose because its symptoms are sometimes similar to those of other diseases, such as rheumatoid arthritis. Therefore, if you are experiencing any of the above symptoms, it is important to seek medical care to help determine the cause and ensure appropriate care and management.
What are some uncommon symptoms of lupus?
Though the most common symptoms of lupus are often rashes on the face, overall fatigue, joint stiffness and pain, there are some less common symptoms that may arise from the autoimmune disease. These include frequent nose bleeds, small lumps or lesions on the skin, tiny purple dots on the skin, chest pain, hair loss, slow or absent menstrual cycles, low blood pressure, headaches, aching in the limbs, seizures, mood swings, memory loss, dry eyes, enlarged lymph nodes, and anemia.
People with lupus may also experience a reaction to light, known as photosensitivity. In more severe cases, lupus may cause inflammation of organs, such as the heart, lungs, and kidneys, as well as kidney failure, and neurological disorders.
It is important to note that because lupus flares and changes, uncommon symptoms can become more common over time, so it is important to consult a doctor if any new symptoms arise.
What are daily struggles with lupus?
Living with lupus can present daily struggles for those impacted by the condition. One of the biggest struggles is managing fatigue and energy levels due to the underlying inflammation caused by lupus.
Those living with the condition often experience a wide range of symptoms that come and go, making it hard to predict when symptoms will flare up and when they will return to a normal level. This can make it difficult to plan and manage day-to-day tasks, leading to feelings of frustration and overwhelm.
Lupus can also cause pain and joint stiffness, which can make physical activity a challenge. This can lead to a decrease in overall fitness levels and an increase in muscle weakness or joint pain. Moreover, lupus can cause unpredictable deficits in cognitive processing speed, executive function and working memory, known as ‘brain fog’.
This can impact daily functioning, including concentration and communication, as well as the ability to process information.
For many, lupus can also lead to general feelings of sadness or depression. The unpredictability of the condition and the need for planning and anticipation can leave people feeling helpless and out of control at times.
It’s important to be aware of the mental health impact of lupus, and to seek help if needed.
In addition, lupus can cause organ involvement, including issues with the eyes, lungs, heart and kidneys. This can lead to more serious complications, such as organ failure. It is therefore important to receive regular check-ups and manage any symptoms that arise, in order to minimise the impact of lupus.
All in all, living with lupus can cause a range of daily struggles and it can take time to adjust, plan and manage any additional symptoms that arise. It is important to look after both physical and mental health when living with lupus, as well as seeking medical help if needed.
How do people cope with lupus?
People cope with lupus in different ways, depending on their individual needs. Initially, it is important to be evaluated by a qualified healthcare provider, and to follow their treatment plan. Individual counseling or support groups can also be beneficial in helping to manage the emotional aspects of living with lupus.
It is also important to manage lifestyle changes that can help improve overall physical health. These may include stress management, good sleep hygiene, diet and nutritional modifications, and exercise.
Several forms of exercise are beneficial for people with lupus, including low impact activities, such as yoga, swimming, and stretching. Additionally, adequate rest and relaxation should be incorporated into an individual’s routine to maintain overall health.
Creating a healthy environment is another key to managing lupus. Limiting exposure to environmental triggers, such as cigarette smoke, can reduce the risk of flare-ups. Additionally, dealing with sensory triggers, such as bright lights, extreme temperatures and loud noises, can help reduce stress and other symptoms associated with lupus.
Although many of the symptoms of lupus are chronic, individuals can still live with the condition by managing their symptoms on a daily basis.
Is living with lupus hard?
Yes, living with lupus can be a very hard experience. Lupus is a chronic autoimmune disorder that causes inflammation throughout the body. It can cause symptoms such as fatigue, joint pain, skin rashes, fever, and organ damage.
Managing these symptoms can be difficult and can lead to feelings of isolation, depression, and stress. These feelings can interfere with daily activities and make it hard to focus on important tasks.
In addition, living with lupus can mean changes to lifestyle, diet, and daily routines. For example, people with lupus must be very cautious about exposure to the sun, which means taking extra precautions when going outside.
All of these factors can make living with lupus difficult. Despite this, there are ways to make it easier, such as taking the time to rest, staying connected to loved ones for support, and having a positive outlook.
With appropriate care, many people are able to live full and rewarding lives despite living with lupus.
What not to do when you have lupus?
When you have lupus, it is important to take preventive steps to protect your health and manage your symptoms. There are certain things that you should avoid doing to help you remain in good health.
Firstly, avoid overexposure to sunlight and ultraviolet radiation, which can trigger flares. If you must be in the sun, try to stay in the shade, wear protective clothing and sunscreen, and limit your time outdoors.
Secondly, avoid becoming overheated, as it can worsen your symptoms. Try to stay cool by using fans, air-conditioning, and damp cloths to your skin.
Thirdly, try to avoid exposure to cigarette smoke and other air pollutants, as these can trigger a flare. Keep air purifiers and air conditioning in your home to help improve the air quality. Additionally, avoid stressful situations, as stress can aggravate your symptoms.
If you find yourself becoming overwhelmed and feeling stressed, take a break and do something that helps you relax, such as deep breathing and mindfulness.
Finally, avoid eating large meals or a diet consisting of processed food, as this can lead to inflammation and other issues. Try to eat a balanced diet of fresh fruits, vegetables, whole grains, legumes, and lean protein such as fish, eggs, and tofu, as these are all great sources of nutrients that can help manage your symptoms.
Do you need rest with lupus?
Yes, rest is an important part of managing lupus. Too much physical or emotional stress can make lupus symptoms worse, so rest is essential for helping to reduce the impact of lupus on your life. Rest helps your body heal, giving it time to repair itself, while providing much-needed respite from everyday activities and stressors.
Getting adequate rest can also help to reduce pain and fatigue associated with lupus.
When resting, try to find an environment that is comfortable and as stress-free as possible. Get plenty of sleep and take regular naps during the day. Manage your energy levels – this could be as simple as taking breaks from tasks that are too strenuous and breaking tasks down into smaller chunks that you can complete over several days.
Relaxation techniques or comforts like taking warm baths or reading a good book can also be beneficial.
Also, keep your doctor informed of your progress and any changes or concerns you may have. They can help to ensure you are following the best course of treatment for your particular lupus.
Can you live a normal healthy life with lupus?
Yes, you can live a normal, healthy life with lupus. Even though there is no cure, it is very possible with proper management and treatment of symptoms to lead a full, active life with lupus. This includes making lifestyle adjustments such as eating a balanced diet, getting plenty of rest, and avoiding stress.
Additionally, it is important to take prescribed medications in order to help keep flares from occurring. It is also important to have regular check-ups and appointments to monitor the condition and any changes in symptoms.
While it can be challenging, it is possible to be healthy and active with lupus.
